So as I mentioned in my last post- Julian is STILL having unexplained diarrhea. And to add to the fun, tonight he started to act a little funny.
He was 'sleepy', or so I thought?! We had an eventful day- woke at 5:45 to bring Josh to work so we would have the car while he is out to sea until Friday.. and really have not stopped since. Julian so quietly walked over to the big comfy chair.. grabbed a blanket.. brought it to the sofa.. picked up his cup on the way.. so gently crawled next to me on a pillow and begun to doze off. after a little while of me watching him, amazed at how calm he was being- but sure it was just due to being OVER tired, I knelt next to him to kiss his forehead, wrap my arms around him to pick him up and carry him up to his bed. To my surprise, Julian was burning up with fever, and snot was pouring out of his nose. Talk about confused.... none of these sick symptoms had been present all day long. I called the doctor after taking his temp and seeing it in the 102's.. to be sure I should pursue with sick day treatment. Julian's doctor assured me that it did sound like a good idea, and questioned me about anything else going on that might be causes his fever and high's. I reminded him of Julian's consistent diarrhea that hasn't gone away, but has come and gone over the past weeks. Julian's doctor wants him to be checked to see if he has celiac disease.
After treating Julian for his fever, i brought him upstairs for bed and was getting ready to go take a bath and head to bed myself, when Josh caught me on Facebook chat. We were chatting when i saw Julian turning over on his bed- back and forth he was rolling- and his little face spotted the camera..and his eyes were as big as silver dollars. I ran upstairs, i could see something was wrong with him. As I approached him in his bed.. he did the whole " look straight through me" thing as he did before when he had a seizure, and i knew what was coming- way more prepared this go around. I checked his blood sugar, to find it was fine, 255. I was so thrown off, because I had no clue how to make this seizure stop, where as before it was due to a low.. so we knew to give sugar. His little arms locked up, and his scream tore through my soul, and the convulsing begun. It was not as long or as sever as it was before, but was equally as scary, if not worse because I was clueless of what to do besides console him, and hold him on his side while waiting for the doctor to call me back for the SECOND time tonight.
Julian's doctor did indeed return my call after I paged him twice( lol). He told me this seizure was not due to his diabetes, but maybe due to his high fever. He told me what to look out for for the next few hours and when I should go ahead and go to the ER and to be sure to follow up with Julian's PCM as soon as possible.
Julian is doing better now, and is just very sleepy and even more worn out from the seizure. He is resting on the sofa and watching nick jr. He still has a fever but it has come down some(not sure of the numbers just yet, i will be checking in 30 minutes) but i can feel that his body temp is cooler.
Please keep my little man in your prayers. Please pray my baby boy does not have celiac disease, and that these seizures will subside as we learn his diabetic needs better and his fever breaks.
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