Why is it that I am no good at change? My entire life is about change... hardly anything stays the same for very long around here. Change is scary, intimidating, and really can shake my roots, and so far this new year, I have faced nothing but Change.Change.CHANGE!
10 days into the New Year, I was called being told my Mim was in the hospital,and that she had suffered a minor heartattack. I was informed she was stable, and talking..but was being put in ICU only because there was no other rooms available at the time. With this information i didnt want to hit the foggy road, and waited til morning when I hopped in my car & hailed tail to NOLA. Arriving before visitation, i waited anxiously to see my Mim. At noon when I was allowed back, I walked into the room, and was taken back at the state she was in. I felt like I was completely caught off guard, being she was nothing like I was told. Mim could barely talk, could not move & was skin and bones. I was heart broken, but held it together for her. I wasnt in her room for 10 minutes when the doctor came to "talk to family" & i was there alone. Thankfully my aunt showed up minutes later and the doctor explained to her and myself, that there was nothing more they could do for her, and we needed to get all family to the hospital because they were going to unhook her from everything and be moving her to the 4th floor until she passed. I lost' it', and feel that I havent regained 'it' since the day. Mim made it through the night and passed on the 13th. I never have felt such pain, and loneliness.
After putting Mim to rest, the next two weeks seem foggy to me now, but i knew i got through each day thanks to my kids and their routine kept me busy.... But before i knew it, I was face to face with CHANGE again.
Julain's BG numbers spiked in the middle of the night, i didnt think to much of it, just figured it was a bad pump site and i'd change it out first thing the next morning. After doing all i knew the next day and half.. i brought him into the ER per docs request, because Julian's BG was over 400 since the initial night. After spending the day on base at the ER, we were transferred to Childrens Hospital New Orleans... where we spent the next WEEK. The doctors were dumb founded and made it clear that Julian's case was one of the hardest they have had. We spent 2 days in ICU and 4 days in the normal floor. Julian's BG's were still a roller coaster until the last night. Julian is receiving 5x's as much insulin as he was prior and noone seems to understand, or know why. He is also NOT on his pump anymore, and after a year of being spoiled by the pump... we are back to injections. We have to have two different insulin's again, and his correction factor, and insulin:carb ratio has changed as well.
Change.Change.Change.Change.
After being home a few days and getting back into the swing of things, we found out Julian's best friend/neighbor is moving to Peurto Rico. This is such a big change for Juju. He is heart broken, and usually goes through the day, peaking out the window in hopes of seeing Brian outside, or begging me if I can go get him to come and play. We would visit with Brian almost everyother day, if not daily...and him being gone has truly broken Julian's heart. :(
Two days after Brian's move, Jai turns up sick as a dog. so of course sleeps with his momma. We are back to square one of fighting sleep, and getting him to sleep in his bed again. My kids are just as bad to change as I am.. and we like our routine.
Change has been the name of the game lately, and I am trying to adjust. I do not have very many pictures lately, bc sadly I have not touched my camera. But I am hoping that will change here soon. This is a brief update just to let everyone know why we have been MIA, but praying really hard we can get back into the swing of things again this week!















